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Behavior: Profile

His child’s diagnosis changed the course of Craig Newschaffer's career and led him to redirect his epidemiological skills.

By Craig Newschaffer

My son was diagnosed with autism when he was about 2½. Being in the business I’m in, I did a lot of learning on my own. I wrote some articles for the newsletter of a local autism society. I met with parents who were concerned about an autism cluster.All this got me wondering whether this was the direction I should take my epidemiological research. If I did this I couldn’t come at it from the perspective of someone crusading to help his own kid—the kind of work I do is on a completely different timetable. In the end, the bridge I had to cross was: I think about autism at home an awful lot—is it something I want to think about every day at work, too?

Then I came to Hopkins. This is a place where innovative thinking in public health is what it’s all about. Here there were a number of colleagues from other disciplines actively engaged in autism research. I decided there was an opportunity here I couldn’t pass up.

What I’m trying to do is bring epidemiologic research approaches to autism and other developmental disabilities. There’s been a real lack of that, which is one of the reasons why we’re behind other complex diseases like cancer, where there’s been a push for 15, 20 years now to look at how genes and environmental exposures work together. 

I feel like I have more of a vision in my work now. The next decade is going to be huge for autism research. We’re not going to have every cause delineated and prevention strategies in place, but I think we’re going to move from this vacuum to a point where we’ve got some pretty good leads.

Jonas is 11. He’s a great kid. Living with him day in and day out is just amazing. It’s a round-hole world. He’s a square peg. All day. Every day. Once you get to know someone with autism, you can’t help but use a word like heroic to describe them.